|
Asociaciones
Internacionales de Gaucher
(pacientes y/o otros grupos) |
|
Canada
(National Gaucher Foundation)
www.gaucher.org Children Living with Inherited Metabolic Disorders www.climb.org.uk/Links.htm France (Vaincre les Maladies Lysosomales)* www.provnet.fr/VML/ Ireland (Gauchers Association) www.gaucher.org.uk/contents.htm Israel (Israel Gaucher Association) www.gaucher.co.il/ Italy (Associazione Italiana Gaucher) www.gaucher.org.uk/it/first.htm Italy (University of Catania) www.medict.8m.com/nutrizione.htm Society of Inborn Errors of Metabolism www.ssiem.org.uk/ Asociación Gaucher de México www.gaucher.org.mx |
|
Advocacy/Government/Resource
Sites
|
|
Hay
varias páginas independientes que dirigirán pacientes y
médicos a información sobre el tratamiento de Gaucher. |
|
American
College of Medical Genetics
www.faseb.org/genetics/acmg/ Federation of American Societies for Experimental Biology www.faseb.org/ Children’s Gaucher Research Fund www.childrensgaucher.org/ Gaucher Kid’s www.gaucherkids.com/index.html National Center for Biotechnology Information www3.ncbi.nlm.nih.gov National Gaucher Foundation - USA www.gaucherdisease.org National Organization for Rare Disorders www.rarediseases.org Rare s Diseases in Children http://mcrcr2.med.nyu.edu/murphp01/texthome.htm Society for Inherited Metabolic Disorders www.simd.org/ Spain (FEETEG - Universidad de Zaragoza) http://wzar.unizar.es/gaucher |
|
Genzyme
Corporate Sites - Páginas de Genzyme Corporation.
|
|
Genzyme
Corp Cerezyme Gaucher
Registry |
|
Centros Médicos |
|
Algunas
páginas de los centros de tratamiento,
para pacientes y médicos tratantes. |
|
Cedars-Sinai
School of Medicine
http://gaucherwest.com/ Massachusetts General Hospital http://gaucher.mgh.harvard.edu Mount Sinai School of Medicine Gaucher Treatment Program http://academic.mssm.edu/gaucher New York University Mount Sinai School of Medicine Gaucher Treatment Program http://academic.mssm.edu/gaucher New York University http://mcrcr2.med.nyu.edu/murphp01/lysosome/dischart.htm University of Pittsburgh, Genetics Site http://www.pitt.edu/~edugene/jewish.html University of Southern California http://www.usc.edu/medicine/radiology/Gaucher |